My Sadie...I thought we were to go on in this pain forever. I thought they had forgotten you. The Nephrologist we've been dealing with through the Stollery called today with results from testing. They have been talking to specialists all across the country about you... I thought they had moved on, leaving us in this struggle alone. They said your blood shows no ADH hormone... two times they tested. Twice the tests came back with no Anti-Diuretic hormone. It doesn't match up with other tests. MRI showed an ectopic pituitary as well. We will be speaking with endocrinologists as well... finally. They will admit you again, re-do tests. I'm sorry my honey... more pokes. *tears* So thankful that I've been patient with you despite your tantrums for BIG drinks. So thankful that I responded with love and hugs and kisses and a gentle response. So thankful. You are sleeping now, my little Sadie. I love you. So thankful you are remembered. , mama
5 comments:
Oh, Jessie...I am crying too. Hold onto Jesus. I will update my homeschool group-we have been praying for you! Hugs...Sherilyn
Tears here too - Thank God for answers starting...
p
Well, I'm not sure what ectopic pituary is (I'll google it) but I'm so glad they have someplace to start at least. I can't imagine how these tests clearly show no ADH...and the Kidney specialist insisted that she was producing it. Anyhow...Jessie...I'm sure it is the last thing you care about...but you should feel quite vindicated! I'm so happy that the testing was worthwhile...and now...on with the game plan. Thank you Father!!
Will continue to pray for little Sadie and your whole family. Hopefully some answers and resolutions can be found.
We will continue to pray for you and Sadie through this.
Post a Comment