Thursday, May 14, 2009

How the Day Unfolds

Sometimes the day unfolds and reveals trouble you weren't expecting. Some days, there is release and mercy. Today I found mercy. Instead of 2 days in the hospital non-stop, they broke it up for her. They ran tests today and then she came home. They sent blood work off to the Mayo Clinic in the States and did some of their own blood/urine work. They also gave her the anti-diuretic hormone she is missing and watched her all day to make sure that she wouldn't react to it. She ATE on the way home; four chicken nuggets in a row, without taking a drink!...or even asking for one. *makes me want to cry* For the past 2 1/2 months her eating has been getting worse. Swallowing anything even a little dry has been hard for her. She chooses favourite foods now according to the water content not taste. Desperation is common around here and my shirt is getting long from tugs for drinks. She *looks* different even since coming home. Her eyes have looked sunken to me for months. Her arms, legs, back have been bony. Not so right now. Her body is holding onto water instead of letting it all go. I weighed her and she was at 28 lbs...and happy... waiting and watching.

3 comments:

Sherilyn said...

So glad you are seeing some improvements. My kids and I pray for Sadie every morning. Thanks for the updates-I watch carefully for them!

Stephanie said...

I am so glad for you all! I hope she continues to improve and react positively to the meds!

*hugs*

paige said...

*relief*... i'll keep watching for more updates today, jess!