Well, it was an interesting appointment today. We went to see Dr. B. about the results from the follow-up CAT and PET scans and blood work. Here is the simplest way to explain the appointment:
The blood work for tumour markers came back normal this time. :D
One of the scans for bone lesions was clear. (The one that was supposed to light up any lesions.)
The second scan showed a non-lit-up lesion on her scull on the left parietal section.
Dr. B. (oncologist/hematologist) decided to consult on the spot with a neuro-surgeon regarding a possible biopsy of the lesion to determine whether or not the lesion was LCH (langerhans cell histiocytosis) which is what they were looking for with the scans. He told us that if the neurosurgeon said it would be too invasive, then he had the option of doing a 6 week course of treatment. (There is no other way to diagnose LCH as it does not show up in the blood or anywhere else...so we would be treating on an educated "guess" without the biopsy.)
We waited for the neurosurgeon to weigh in.
He arrived, felt her scalp, looked at the scans and asked if she had complained of any pains.
We said no.
He said that he could not see any lesions on the scan that had supposedly shown a lesion, that he couldn't feel a lesion on Sadie's scalp and that since she is presenting with no other symptoms besides DI, he would not recommend a biopsy.
He then ordered some good old fashioned X-rays to confirm whether or not there was a lesion where the other scan seemed to suggest.
He doubts it.
I do too at this point.
Dr. B. gave us the paperwork and told us he would call us with the results later on today and we went downstairs and got the x-rays done.
Now again...we wait.
It won't feel like this leg of the journey is over until Dr. B. says we don't have to ever see him again. So i'm holding myself back from going crazy with glee... and at the same time.
:D
This sure feels like a fantastic answer to prayer.
grateful.
Wednesday, October 27, 2010
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3 comments:
Oh, so relieved.
I wanted to call today and i'm sitting here with my phone next to me :)... but so good to read this and i'm praying for a good final response too...
Simply trusting.....
Yaaay!!!
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